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Thank you for visiting our site, dedicated to the research of Wegener’s Granulomatosis (GPA).

James Hancocks

This website provides up-to-date information written by consultants about Wegener’s and about the range of treatments available and the findings of the Trust’s research. You will also find stories from people with first-hand experience of the disease and information about how to contribute to the work of the Trust. The Trust aims to empower patients and those who care about them; whatever your reason for visiting the site, we hope you find what you are looking for.

 

St Thomas’ Wegener’s Trust

Wegener’s Granulomatosis (GPA or Granulomatosis with polyangiitis) is a very rare condition. There are often delays in the diagnosis because it is overlooked by clinicians, and its treatments have so far been simply borrowed from cancer. Donations to the Wegener’s Trust are therefore proving particularly effective in furthering our understanding of the condition and of potential treatments.

Donations go straight to researchers and equipment; being under the umbrella of Guy’s and St Thomas’ Charity, there are no administrative costs for the Wegener’s Trust to bear. The Trust funds scientists and clinicians to work with Professors David D’Cruz and Jo Spencer to pursue various productive lines of research into Wegener's (GPA), trying to get to the core of what is causing this disease with a view to developing specific treatments.

It is astonishing that although Dr Wegener identified this disease and suggested potential causes of the condition in the 1930s, very little targeted research has been undertaken. It is now.

Professor D’Cruz and his team

Professor D’Cruz and his team run the Vasculitis Clinic within the Louise Coote Lupus Unit at St Thomas’ Hospital and over the last twenty years have accumulated vast clinical experience of Wegener’s granulomatosis (GPA), which informs the team in prioritising our research efforts.

Fundraising News

March 17, 2020
Covid-19 update for GPA patients

Public Health England is advising those who are at increased risk of severe illness from coronavirus (COVID-19), which includes individuals with GPA, to be Read on...

September 22, 2019
London Marathon 2020

Do you have a friend or family member suffering from Wegener’s (GPA) or are that person suffering from the condition? Are you a keen runner or just fancy Read on...

May 26, 2017
Medical Research Council is funding a three year trial of hydrochloroquine in ANCA vasculitis (mainly GPA)

“If our study is positive, we hope that hydroxychloroquine, an old fashioned and safe drug widely used in other rheumatic conditions, will make a real diff Read on...