Thank you for visiting our site, dedicated to the research of Wegener’s Granulomatosis.
This website provides up-to-date information written by consultants about Wegener’s and about the range of treatments available and the findings of the Trust’s research. You will also find stories from people with first-hand experience of the disease and information about how to contribute to the work of the Trust. The Trust aims to empower patients and those who care about them; whatever your reason for visiting the site, we hope you find what you are looking for.
St Thomas’ Wegener’s Trust
Wegener’s Granulomatosis is a very rare condition that simply gets ignored in the allocation of funding in the NHS; its treatments have so far been simply borrowed from cancer. Donations to the Wegener’s Trust are therefore proving particularly effective in furthering our understanding of the condition and of potential treatments.
Moreover, donations go straight to researchers and kit; being under the umbrella of Guy’s and St Thomas’ Charity, there are no admin costs for the Wegener’s Trust to bear. Already, the Trust is funding a scientist over the next three years to work with Dr D’Cruz and Jo Spencer to research B cell biology in Wegener's using sinus biopsies, getting to
the core of what is causing this disease with a view to developing specific treatments. It is astonishing that although Dr Wegener identified this as a potential cause of the condition in the 1930s, very little targeted research has been undertaken. It is now.
Dr D’Cruz and his team
Dr D’Cruz and his team run the Vasculitis Clinic within the Louise Coote Lupus Unit at St Thomas’ Hospital and over the last twenty years have accumulated vast clinical experience of Wegener’s granulomatosis, which informs Dr D’Cruz in prioritising our research efforts.
September 25, 2011
Successful first year of fundraising
Fundraising events for the Wegener’s Trust by families of patients have ranged from 200 mile cycle ride from Surrey to Swansea world record 40 hours of 5 Read on...
September 8, 2011
Esher to Mumbles 200 mile Cycle Ride
A cycle ride of more than 200 miles from Esher, Surrey to Mumbles, Wales should provide incentive for a motley crew of (very) amateur cyclists to raise mon Read on...
May 15, 2011
Marathon 5-a-side Football World Record
Two squads of eight lads, playing 5-a-side football for 36 hours in order to get into the Guinness Book of Records. Sounds easy doesn't it? That's a day an Read on...